Growing Up with FSHD: Lexi Pappas Tells All in New Documentary

Also, the disease cannot take control of anyone. Yes, it may be a hindrance to some of the things that most people are used to doing, but it can never determine how one will live out his or her life. Lexi made this video to not only give hope to those who have the disease but to also raise awareness of it so that more funding can go into research for a cure.