The Power of Love: Living with Spinal Muscular Atrophy
What is needed to break down those barriers
The good news is that organizations can take the small steps needed to break down the accessibility barriers that patients and their loved ones face.
- Creating specialized diagnosis care packages for the families of young children who have SMA.
- Informational booklets, classes, and workshops on how to care for someone with SMA - from childhood to adulthood.
- Funding for specialized equipment, such as wheelchairs, accessible vehicles, ramps and bathroom fixtures.
- Financial support for families through grants, scholarships and even low-interest loans to help cover the cost that comes with living with a disease like SMA.
All of these and many others are just examples of how society can begin to break down the barriers that are faced by thousands of children, parents and primary caregivers on a daily basis.