• What else can I do to see a specialist ASAP?

I’m a 50 year old white female, 125 lbs, and have a 10 year history of a never- ending chronic migraines plus extreme fatigue, purple hands and feet, restless leg syndrome, tinnitus, and within the last few years, a couple of seizures, agoraphobia, panic attacks, depression and in Dec 2018 started having uncontrollable episodes of rage. Awesome childhood, parents & siblings I am very close to, a terrific husband of 22 years & two daughters - one is a senior, the other in her 3rd year of college. Most of the above symptoms sounds like I’m anemic but hemoglobin has always been within range. I just returned from the Mayo Clinic where I had my ferritin and folate levels also checked. Ferritin was 5.7 & folate was 3.2. Iron level was 10. I was perfectly fine until I had chicken pox at age 40. Not sure if that triggered the low ferritin, folate and iron or not. My dr at Mayo said I should skip the iron pills and do an infusion ASAP. My husband & I have tried our hardest to get into a hematologist and have a referral from my GP however the soonest appt is a month out. Are the low levels dangerous enough that we need to maybe be louder? I’ve had the same GP for over 12 years and have “complained” many many times that I feel like I have mono again (had it in HS). But ferritin was never checked, just regular CBC where hemoglobin was within range. Then it was dropped basically.

What else can I do to see a specialist ASAP? I feel I have not been a good mother or wife for the last decade and want to feel like myself again! Plus we had a tornado completely destroy our home 12/26/2015 - yes the day after Christmas - welcome to Texas - and although we were not at home, the psychiatrist at Mayo diagnosed me with PTSD. Never even crossed our minds since we didn’t live through the actual tornado. But made perfect sense once she explained why.

Thank you for any feedback.

3 Answers

  • Internist
  • Green Valley, AZ

Hello, You seem to have a multitude of symptoms which are not related, but having low iron could explain many of them including migraine, fatigue, sleep problems, restless legs, depression and anxiety. You should try and expedite the referral to a specialist. Often you can be put on a waiting list and if someone else cancels their appointment, you might be lucky enough to get called in to replace that patient. Cancellations occur all the time. Sometimes you can choose a different doctor who might have more availability and another option is to see a PA or NP. Its not ideal but specialized PAs and NPs are often quite good because they are only working in 1 type of specialty and can be almost as knowledgeable as the specialists. Also its often easier to get evaluated by the PA or NP and if your case is significant enough, you will often be able to get a quick evaluation that day by the specialist if the PA or NP feels you need the physician for evaluation. You will most likely need to get further lab testing. Im not sure what else was checked at the Mayo Clinic but likely you will need to be checked for celiac disease which causes malabsorption and iron deficiency. You are a bit older than most patients diagnosed with celiac disease but it needs to be checked.There are several vitamin deficiencies that should also be checked and thyroid levels as well to be thorough. If you have not had a colonoscopy, that might also be recommended for colon cancer screening as well as to check for possible gastrointestinal bleeding. You dont have any obvious symptoms but you can have intermittent bleeding that can cause low iron as well as intermittent anemia. I hope this helps and I wish you the best.

  • Internist
  • Saginaw, MI

Hi . One of the first things u can do is call hematology office and tell them if there any earlier spots Or that if someone cancels u can go sooner . 2nd klonipin is know to cause Pancytpenia meaning rbc platelets and sometimes wbc is low . People are suppose to have blood work every three months on Klonipin . There is many side effects to klonipin Fatigue dizziness sleepy Lack of energy To name a few . You may have to take a holiday from the Klonopin theres many other antiseizure dogs and antidepressant drugs and antisociety drugs that you could try that dont do that while like Connie is good for especially if you have his resting tremor, but its really really not a first line seizure drug or benzo diazepam so that would be the first thing it always usually comes back down to the meds and you should be on B12 at least 500 to 1000 mg a day because that combats theres 360 spots in your body where this is used as a cold factor for bodily functions. It helps combat anxiety. It helps youre supposed to calm help your posture helps your anemia and then number two everybody should be on D3 at least 1000 units Daily. I hope this helps Connie J Braun MD

  • Internist
  • Waterbury, CT

I think that there is a good chance that repletion of your iron stores with iron infusion will resolve or at least improve your fatigue and restless legs. This is a chronic problem and if your hemoglobin is normal, it is not likely that waiting until next month will cause physical harm, though I do suggest calling your PCP to see if the appointment can be bumped up. I think it is also important to consider why you might have problems with low iron stores. Have you been checked for celiac disease (gluten intolerance)? Another potential cause of poor iron absorption is chronic use of proton pump inhibitors (your acid medication). It might be reasonable to try to treat GERD with strict diet and a wedge pillow instead of chronic use of high doses of omeprazole. Also, make sure to disclose all supplements used. Some can be toxic, especially in higher doses. It is completely possible that your sleep study showing REM sleep disorder could be related to restless legs and caused by iron deficiency. In this case, klonopin might be tapered off. Benzodiazepines can worsen GERD and can have a lethal
withdrawal syndrome, including seizures if you take them long term or at high doses or both. Celiac disease can also cause GERD and seizures. Interestingly, common viral infections such as chicken pox can actually trigger immune responses that cause celiac (gluten intolerance). So, you might be right about that detail. So the common denominator here is potentially celiac disease and/or omeprazole. I do strongly suggest finding a good gastroenterologist. These are simply my random thoughts and are not meant to constitute medical advice.

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