Growing Up with FSHD: Lexi Pappas Tells All in New Documentary
FSHD in the family
Photo: Diane Pappas and Robert Norris. Source: FSH Society.
Lexi isn’t the only one in the family who suffers from the condition. In fact, Lexi’s mother, Diane Pappas also suffered from the condition. Just like Lexi, Diane also loved sports and participated in games such as hockey. She eventually realized that she had FSHD when she couldn’t get her arms up properly to hang her clothes. Other than Diane, Lexi’s grandfather, Edward Norris also suffered from the condition. In fact, the documentary is dedicated to her late grandfather.