Growing Up with FSHD: Lexi Pappas Tells All in New Documentary
Other fun activities
Source: FSH Society.
Although Pappas had to give up sports, she still continued with her life and looked for other activities that suited her. One of those activities was public speaking. In the documentary, Pappas participated in many public speaking contests in her school in which she openly talked about her FSHD. This did become a passion for her and allowed her to share her story with strangers.
While most patients become distraught when realizing that they have FSHD, it’s still better to continue with life and do other things that are enjoyable—similar to what Pappas did. Now, she has thousands of followers who are inspired by her story.